Author Archives: braydenjanetzke

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I am very happy for Brayden. He has wanted to ride the bus to and from school ever sense Logan has. Now he can and his brother is riding with him! He absolutely lives it! Both the boys’ teachers let me know how they got to school with big smiling grins on there faces. That to me, as a mom, is priceless! It wasn’t easy, we had to make sure everything was in place before he was able to do this. Knowing that he is safe, has an aide, and a neck brace while he rides on the bus, made it a lot easier. I am just so happy for him and Logan. Proud Momma! Continue reading →

Today Brayden was able to participate in a biomarker study for SMA. We went to Kalamazoo (2 hour drive) to be able to help with the study. Each and every step gets us closer to finding a cure! We had to make … Continue reading →

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✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of children under the … Continue reading →

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Today we are at Helen DeVos Childrens Hospital. His tonsil surgery is scheduled at 10:45. Brayden did great letting the Dr. put in his IV. He even got a ty dog that he named Bobo. We will post an update … Continue reading →

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Brayden’s 2nd Annual Bowling Event Click the link above to view flyer. or visit http://www.fsma.org/braydensbowl We are in need of Lane Sponsors and Silent Auction Items. Let me know if you can help! cljanetzke@gmail.com

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We had a great day at school. Brayden has an amazing teacher that is very understanding of Brayden’s needs. There are 9 other kids in his class, and they all play really well and listen to the teacher! She helped … Continue reading →

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Happy Thanksgiving!!! There are so many reasons to be thankful! We are blessed in many ways!! I just wanted to share some of the fun adventures we have had this past year….. Here are a few….My 2nd Birthday, my first fundraiser … Continue reading →

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We are so happy that Brayden started riding!!! We recently found a local non-profit organization that is 10 min away for Brayden to ride a horse. There are so many benefits; working small/large muscle groups, improving core strength, balance, coordination, … Continue reading →

Brush-up on Awareness; ✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of … Continue reading →

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The Annual SMA Candle Lighting will be this Saturday, August 11th. Join with families and SMA organizations around the country by lighting a candle at sunset to remember those SMA Angels who have lost their battle with SMA and to … Continue reading →

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Our Trip started on Tue, June 19th – Mike drove ten hours during the night straight to the double tree hotel in Bloomington, MN. We had  a few stops along the way. Logan had to go potty and would wake … Continue reading →

Today we went to test a powerchair, at Mary Free Bed in Grand Rapids, so Brayden can learn to be a bit more independent. I remember Logan’s first steps at 11 months old. I remember how emotional I was, and proud for … Continue reading →

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Today was our fist trip to Vent Clinic at U of M. It went good but we were there for quite a long time. They have a great team and reassured us that Brayden is doing great and we are helping … Continue reading →

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We had such a great time last weekend in Lansing! What a great way to come together and meet other SMA families! In total over $40,000 was raised. There were alot of families that came out. We had a great … Continue reading →

Buffalo Wild Wings 20% donation Flyer Click the link above to print off and present to at time of ordering. Another great way to make a donation to the Muskegon Guns & Hoses Charity. Brayden is one of the beneficiaries … Continue reading →

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So it has been exactly one year since we first heard the words Spinal Muscular Atrophy. What a mouthful, and what does that mean? SMA is a motor neuron disease. The motor neurons affect the voluntary muscles that are used … Continue reading →