Blog Archives

Brayden’s first surgery went great!

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Today we are at Helen DeVos Childrens Hospital. His tonsil surgery is scheduled at 10:45. Brayden did great letting the Dr. put in his IV. He even got a ty dog that he named Bobo. We will post an update … Continue reading

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Save the date St. Patrick’s Day! Bowling Fundraiser

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Brayden’s 2nd Annual Bowling Event Click the link above to view flyer. or visit http://www.fsma.org/braydensbowl We are in need of Lane Sponsors and Silent Auction Items. Let me know if you can help! cljanetzke@gmail.com

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Brayden’s is officially a “Pre-schooler”

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We had a great day at school. Brayden has an amazing teacher that is very understanding of Brayden’s needs. There are 9 other kids in his class, and they all play really well and listen to the teacher! She helped … Continue reading

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Photos of Brayden

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Happy Thanksgiving!!! There are so many reasons to be thankful! We are blessed in many ways!! I just wanted to share some of the fun adventures we have had this past year….. Here are a few….My 2nd Birthday, my first fundraiser … Continue reading

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Equine Therapy

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We are so happy that Brayden started riding!!! We recently found a local non-profit organization that is 10 min away for Brayden to ride a horse. There are so many benefits; working small/large muscle groups, improving core strength, balance, coordination, … Continue reading

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August is Spinal Muscular Atrophy awareness month

Brush-up on Awareness; ✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of … Continue reading

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Annual SMA Candle Lighting

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The Annual SMA Candle Lighting will be this Saturday, August 11th. Join with families and SMA organizations around the country by lighting a candle at sunset to remember those SMA Angels who have lost their battle with SMA and to … Continue reading

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