Friday Sep. 2 Brayden had his first appointment with Dr. Schuen. We went prepared knowing what to ask for….I didn’t think that the office would act so quickly though. That day they ordered a Sleep Study, Echo, Swallow Study, Chest X-Ray, and developed a respiratory Action Plan. So far he has already done the Sleep Study and Chest X-Ray. We now have some new equipment in his room. Nebulizer to distribute albuterol and a Cough Assist Machine…only to be used when he has a cold coming on. I feel like were getting somewhere, but yet I know we are so far away! Tomorrow meeting with Carolyn one of his PT’s and Friday a meeting with Jenn his Generation Care PT.