2018 Michigan Chapter Walk-n-Roll: Brayden’s Warrior’s – | Cure SMA

http://events.curesma.org/site/TR/Walk-n-Roll/General?team_id=6684&pg=team&fr_id=3189 Join us May 5th for the annual SMA Walk-&-Roll!!

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BOWL WITH BRAYDEN 2018

Brayden’s 7th annual Bowling Fundraiser for Spinal Muscular Atrophy. **Please pre-purchase your tickets to get registered** Friday May 11th from 6 to 9pm Enjoy 3 hours of cosmic 🎳 bowling with two slices of 🍕 pizza and a pop. Tickets … Continue reading

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Michigan Mortgage Gives Back

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Michigan Mortgage is giving back and having Brayden as the November beneficiary of their give back program. For every Facebook check in Michigan Mortgage is going to donate $1 to Brayden’s Voyage. We have to thank Michigan Mortgage and Tracy … Continue reading

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Spinraza

What is Spinraza? SPINRAZA is the first and only FDA-approved treatment for spinal muscular atrophy (SMA). In laboratory tests and animal studies, it was shown to increase full-length survival motor neuron (SMN) protein by targeting the process through which it … Continue reading

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Bowl with Brayden 2017

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We have fantastic news coming up we have our Annual Bowling Event this Friday! May 12th from 6 to 9 pm at Northway Lanes in Muskegon, Mi We will have a huge Silent Auction table this year and New Photo … Continue reading

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Facebook – Brayden’s Voyage

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We have been using Facebook recently to add post about how and what Brayden has been up to. Here is a link to take a peek….. http://www.facebook.com/braydensvoyage/   Hope you have a great weekend! Smiles!

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Photos ~ Brayden’s Bowling Fundraiser

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*feel free to contact me for a digital image at cljanetzke@gmail.com

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Bowl with Brayden 2016

We are ever so grateful for the opportunity to hold Brayden’s 5th Annual Bowling Fundraiser! With your help we raised over $4,100. This is such an amazing about to help with Brayden’s medical expenses. We had additional donations that came in from Betten for $1,000, Life Tree Community Church $1,000, as well as a $5,000 donation from Lori’s Voice! This puts our grand total to $11,100. We also received a grant from the Children’s Special Network Fund in the amount of $7,000 towards the conversion on an accessible van. With that being said we are up to 18,100. The conversion alone cost is $23,000 per attached quote. We are about $5,000 shy of our total goal. We are always interested in applying for grants that could fill this gap, If you are aware of anyway to help Brayden achieve this let us know by email or phone under the contact us tab on this site. Thank you again for each and every person that has been involved in our journey to give Brayden the best quality of life we can. It takes a whole village to raise a child. Our Blessings – The Janetzke Family

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You Caring

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https://www.youcaring.com/brayden-janetzke-449521 This link will take you to our fundraising page. We have received a generous grant from a local organization called Lori’s Voice to help with the cost of Brayden’s Van! Here is another way you can help by donating … Continue reading

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Bowl with Brayden

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  We have fantastic news coming up we have our Annual Bowling Event this Friday! April 29th from 6 to 9 pm at Northway Lanes in Muskegon, Mi We will have a huge Silent Auction table this year and New … Continue reading

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I ROLL WITH BRAYDEN T-SHIRTS

Brayden’s Voyage Fundraiser Apparel

Brayden Tee

****UPDATE 8/20/2015 T-SHIRTS ARE AVAILABLE BY CONTACTING CHRISTINA AT 231.903.9612 OR CLJANETZKE@GMAIL.COM****

They come in a variety of sizes in blue gliden cotton. Cost is $20 each. Thank you for spreading SMA awareness and supporting Brayden’s fight with SMA!!

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My Hero – Mobility Awareness Month

Please help share and vote for Brayden to enter to win the Mobility Awareness Month Accessible Van! They are holding a vote to win for 4 winners!!! This would be a blessing for Brayden for many years!! I could even se him potentially driving it in the future!!! lol

http://www.mobilityawarenessmonth.com/entrant/brayden-janetzke-whitehall-mi/#.VUen_nUfo_A.facebook

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Bowl with Brayden

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We cannot thank you enough for your support! We have to thank our sponsors too! Thrivent, Woman’s Life Chapter 894, Macleod Insurance Agency, and Northway Lanes! We had so many donations for our Silent Auction that ended up being a wonderful turnout! With your help we … Continue reading

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Bowl with Brayden – Friday April 17th

We are excited to announce that we have partnered with Woman’s Life Chapter 894 and Thrivent Financial this year for Brayden’s Annual Bowling Fundraiser. Please contact me to get your tickets today! cljanetzke@gmail.com or 231.903.9612 See our event by clicking here.

Enjoy great food, fun & prizes!

What:  Pizza, Pop & UNLIMITED bowling

Who:  Individuals ($20) or Families ($75 for four, $90/5, $100/6)

When:  Friday, April 17th, 2015 6 – 9pm

Where:  Muskegon, MI Northway Lanes 1751 Evanston Ave., near US-31 & Laketon

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Recess

We have snow âť„ and yes it is hard for his powerchair to maneuver especially because it is very un-level. So Brayden’s therapists brought in a sled for him to be able to play with his class at recess! He loves it and has a great time going out even if it’s for 5 or 10 min. It is a way to include him with his class in this wonderful cold season.

My heart is so thankful for the team he has at school! They always try to improve or think out of the box with Brayden. And yes I have to praise Brayden for rolling with all these ideas, the ones that work and the ones that do not. He is such a trooper!

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Breathing at night

He is sound asleep using his new Trilogy machine. This will ensure Brayden will be taking full breaths at night due to his sleep apnea. SMA is gradually starting to take from Brayden what comes naturally to all of us. We are blessed that there is equipment available for him to use. It’s one of the latest and greatest machines of its type and I am sure in just a few short weeks we will be pros at knowing everything about it! Here’s to hoping to sleep through the night someday!

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Happy Halloween!

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Somehow I skipped holloween. We had so much fun carving pumpkins and going trick or treating. (even though is was hailing) We hope everyone had a great time that night too!

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Thankful for my life!

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Brayden’s school was able to send feathers home for children to decorate.  Each class is a different color and Brayden’s class had blue. His thankful feather is on the bottom left side. He is able to drive by it every day and I am certain that it puts a smile on his already happy face. I just love that he has the care and attention in a general education setting like he does! I miss him during the day but live that he is able to get out an be with kiddos his age 🙂

Happy Thanksgiving!

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Brayden’s class trip to Weeses Bros. Garden Center

This was a great place to go for some fall fun! Here is Brayden enjoying his time at the pumpkin patch 🙂

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Brayden has started 4 year Pre-school

20140909_083052I could not be any happier for this bight eyed boy who is so social to begin his year with his new class. He has such a supportive team behind him encouraging him to be his best. Right now his Teacher Mrs. McGee is phenomenal at making education fun and interesting as is his teachers assistant Miss Dawn! He has a new one on one health aide this year Miss Denise. She is great at learning Brayden’s needs and addressing them so he can participate with the rest of the class and do what they are all doing. He has the same PT, OT, and SLP from last year witch I am thrilled because they are great at keeping up with his care and are well trained in how to make this the best year for him. I am so nervous with all the sickness going around but know that we can handle what comes our way. The kids are always washing hands so Brayden’s hands get washed often! I pray all the time that he doesn’t contact anything from school and am hoping that he has been exposed to enough that his immunity has been built up.

20140915_092135Here he is in his stander at school. He is getting so tall and his favorite thing to do is play with the Legos at school. He is riding the bus now too! He has a great transportation team; Driver Miss Kristy, and aide Miss Carrie. He is so happy to ride the bus with his brother and all the other kids at school. When Friday comes (no school) he is sad that he doesn’t have school and brother does. It is hard to know that he will be in Kindergarten next year and will be 5 years old. These first 4 years have been quite the unexpected journey but I have one of the greatest gifts you can ask for! To top it off he is such a happy guy! Love you Brayden, to the end of the earth ❤

 

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