What is Spinraza?

SPINRAZA is the first and only FDA-approved treatment for spinal muscular atrophy (SMA). In laboratory tests and animal studies, it was shown to increase full-length survival motor neuron (SMN) protein by targeting the process through which it is produced by the survival motor neuron 2(SMN2) gene.

Here is a link to a quick 3 min explination:

Brayden received his first loading dose of Spinraza September 27th. He will go back in two weeks for the second and two weeks after for the third then four weeks after for the final loading dose. Once he is set he will go back every 4 months.

We are going to have him take the Hammersmith physical therapy scale to track his progress with Spinraza to see how he reacts to the treatment and how well he progresses with each dose. We are thrilled to be going to Mary Free Bed in Grand Rapids.

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