Monthly Archives: September 2011

Pulmonology Appointment

Friday Sep. 2 Brayden had his first appointment with Dr. Schuen. We went prepared knowing what to ask for….I didn’t think that the office would act so quickly though. That day they ordered a Sleep Study, Echo, Swallow Study, Chest … Continue reading

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“Welcome to Holland” By Emily Perl Kingsley

“I am often asked to describe the experience of raising a child with a disability—to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this: When you’re … Continue reading

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Brayden’s Story

Brayden’s Voyage is dedicated to our son who was diagnosed with Spinal Muscular Atrophy Type II. Brayden Michael Janetzke was born March 12, 2010. He was a whopping 8lbs. 12oz. and 21″ long! He has always had a happy spirit, … Continue reading

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