Blog Archives

http://events.curesma.org/site/TR/Walk-n-Roll/General?team_id=6684&pg=team&fr_id=3189 Join us May 5th for the annual SMA Walk-&-Roll!!

Brayden’s 7th annual Bowling Fundraiser for Spinal Muscular Atrophy. **Please pre-purchase your tickets to get registered** Friday May 11th from 6 to 9pm Enjoy 3 hours of cosmic 🎳 bowling with two slices of 🍕 pizza and a pop. Tickets … Continue reading →

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Michigan Mortgage is giving back and having Brayden as the November beneficiary of their give back program. For every Facebook check in Michigan Mortgage is going to donate $1 to Brayden’s Voyage. We have to thank Michigan Mortgage and Tracy … Continue reading →

What is Spinraza? SPINRAZA is the first and only FDA-approved treatment for spinal muscular atrophy (SMA). In laboratory tests and animal studies, it was shown to increase full-length survival motor neuron (SMN) protein by targeting the process through which it … Continue reading →

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We have fantastic news coming up we have our Annual Bowling Event this Friday! May 12th from 6 to 9 pm at Northway Lanes in Muskegon, Mi We will have a huge Silent Auction table this year and New Photo … Continue reading →

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We have been using Facebook recently to add post about how and what Brayden has been up to. Here is a link to take a peek….. http://www.facebook.com/braydensvoyage/   Hope you have a great weekend! Smiles!

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*feel free to contact me for a digital image at cljanetzke@gmail.com

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https://www.youcaring.com/brayden-janetzke-449521 This link will take you to our fundraising page. We have received a generous grant from a local organization called Lori’s Voice to help with the cost of Brayden’s Van! Here is another way you can help by donating … Continue reading →

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  We have fantastic news coming up we have our Annual Bowling Event this Friday! April 29th from 6 to 9 pm at Northway Lanes in Muskegon, Mi We will have a huge Silent Auction table this year and New … Continue reading →

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We cannot thank you enough for your support! We have to thank our sponsors too! Thrivent, Woman’s Life Chapter 894, Macleod Insurance Agency, and Northway Lanes! We had so many donations for our Silent Auction that ended up being a wonderful turnout! With your help we … Continue reading →

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I am very happy for Brayden. He has wanted to ride the bus to and from school ever sense Logan has. Now he can and his brother is riding with him! He absolutely lives it! Both the boys’ teachers let me know how they got to school with big smiling grins on there faces. That to me, as a mom, is priceless! It wasn’t easy, we had to make sure everything was in place before he was able to do this. Knowing that he is safe, has an aide, and a neck brace while he rides on the bus, made it a lot easier. I am just so happy for him and Logan. Proud Momma! Continue reading →

Today Brayden was able to participate in a biomarker study for SMA. We went to Kalamazoo (2 hour drive) to be able to help with the study. Each and every step gets us closer to finding a cure! We had to make … Continue reading →

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✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of children under the … Continue reading →

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Today we are at Helen DeVos Childrens Hospital. His tonsil surgery is scheduled at 10:45. Brayden did great letting the Dr. put in his IV. He even got a ty dog that he named Bobo. We will post an update … Continue reading →

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Brayden’s 2nd Annual Bowling Event Click the link above to view flyer. or visit http://www.fsma.org/braydensbowl We are in need of Lane Sponsors and Silent Auction Items. Let me know if you can help! cljanetzke@gmail.com

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We had a great day at school. Brayden has an amazing teacher that is very understanding of Brayden’s needs. There are 9 other kids in his class, and they all play really well and listen to the teacher! She helped … Continue reading →

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Happy Thanksgiving!!! There are so many reasons to be thankful! We are blessed in many ways!! I just wanted to share some of the fun adventures we have had this past year….. Here are a few….My 2nd Birthday, my first fundraiser … Continue reading →

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We are so happy that Brayden started riding!!! We recently found a local non-profit organization that is 10 min away for Brayden to ride a horse. There are so many benefits; working small/large muscle groups, improving core strength, balance, coordination, … Continue reading →

Brush-up on Awareness; ✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of … Continue reading →