August – SMA Awareness Month

gfs1✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing

✦Spinal Muscular Atrophy is the #1 genetic killer of children under the age of two

✦Spinal Muscular Atrophy is a pan-ethnic disease and does not discriminate based on race, ethnicity or gender

✦Spinal Muscular Atrophy is born once in every 6,000 babies

✦Spinal Muscular Atrophy is referred from a deleted “SMN1” gene in your DNA; healthy people are born with two, carriers are born with one, & people with SMA are born with none (Survival Motor Neuron)

✦Spinal Muscular Atrophy has a back-up gene called “SMN2” which produces 10%-30% of the original “SMN1” gene

✦Spinal Muscular Atrophy has 5 Types of severity; Type 0, Type I, Type II, Type III, Type IV

✦Spinal Muscular Atrophy has no cure and no treatment…SMA NEED’s a CURE!!!

SMA Candle Lighting

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