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Brayden was born a healthy baby boy on March 12, 2010. We had no idea that he had SMA. We were so happy to have him, he was the sweetest. He loved to listen to music and cuddle! Two years … Continue reading
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Brayden started going to school last Tue. He is in a class with 4 other 2-year-old kiddo’s with special needs. His PT and Infant Toddler Teacher are the ones hosting the class….they are so amazing with him!!!! On top of that his … Continue reading
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Wishing everyone a very Merry Christmas!!! We have been hit with many new obstacles this year and are tackling them one by one with the love and support from all who are around us. Brayden has such a loving spirit it rubs … Continue reading
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We finally got to bring home Brayden’s stroller/wheelchair. I cannot belive it took five months but yes it is finally here and we are so happy to have it. This is an EasyS stroller with all the fixings. It came with a … Continue reading
click the link…. http://www.youtube.com/watch?v=QGOCYDMV-Zk
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This is Brayden’s first time with pneumonia. He has been on anti-biotics for five days now. He is still raspy, but feeling ok. We continue with his nebulizer treatments, CPT & cough assist. We are all praying for him to … Continue reading
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Brayden finally got his AFO’s (Ankle Foot Orthotics). They help support his ankles while standing and positioning. He wares them about 8 hours a day and can also ware them at night.
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So this is Brayden in his stander. It is recommended that he stand about 2 hours a day. Standing is very important to improve bone density, and help resist bone fractures. It does have a tray that attaches so he can play with things while … Continue reading
Friday Sep. 2 Brayden had his first appointment with Dr. Schuen. We went prepared knowing what to ask for….I didn’t think that the office would act so quickly though. That day they ordered a Sleep Study, Echo, Swallow Study, Chest … Continue reading
“I am often asked to describe the experience of raising a child with a disability—to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this: When you’re … Continue reading
Brayden’s Voyage is dedicated to our son who was diagnosed with Spinal Muscular Atrophy Type II. Brayden Michael Janetzke was born March 12, 2010. He was a whopping 8lbs. 12oz. and 21″ long! He has always had a happy spirit, … Continue reading
Brayden's Voyage 