Blog Archives

Annual SMA Candle Lighting

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The Annual SMA Candle Lighting will be this Saturday, August 11th. Join with families and SMA organizations around the country by lighting a candle at sunset to remember those SMA Angels who have lost their battle with SMA and to … Continue reading

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2012 FSMA Conference

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Our Trip started on Tue, June 19th – Mike drove ten hours during the night straight to the double tree hotel in Bloomington, MN. We had  a few stops along the way. Logan had to go potty and would wake … Continue reading

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Powerchair Video

Today we went to test a powerchair, at Mary Free Bed in Grand Rapids, so Brayden can learn to be a bit more independent. I remember Logan’s first steps at 11 months old. I remember how emotional I was, and proud for … Continue reading

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U of M Mott’s Childrens Hospital

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Today was our fist trip to Vent Clinic at U of M. It went good but we were there for quite a long time. They have a great team and reassured us that Brayden is doing great and we are helping … Continue reading

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2012 Families of SMA Run/Walk/Roll

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We had such a great time last weekend in Lansing! What a great way to come together and meet other SMA families! In total over $40,000 was raised. There were alot of families that came out. We had a great … Continue reading

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Muskegon Guns and Hoses

Buffalo Wild Wings 20% donation Flyer Click the link above to print off and present to at time of ordering. Another great way to make a donation to the Muskegon Guns & Hoses Charity. Brayden is one of the beneficiaries … Continue reading

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Our SMA Birthday

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So it has been exactly one year since we first heard the words Spinal Muscular Atrophy. What a mouthful, and what does that mean? SMA is a motor neuron disease. The motor neurons affect the voluntary muscles that are used … Continue reading

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Brayden’s 1st Annual Bowling FUNdraiser for FSMA

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What a great Event!!! We were raised over $4,500!!!! The benefit was for Families of SMA, a non-profit organization that provides family support and reasearch to find a cure for SMA!!! On March 17th, 2012, we hosted Brayden’s 1st Annual Bowling … Continue reading

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Happy 2nd Birthday Brayden!

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Brayden was born a healthy baby boy on March 12, 2010. We had no idea that he had SMA. We were so happy to have him, he was the sweetest. He loved to listen to music and cuddle! Two years … Continue reading

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Update on Brayden

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Brayden started going to school last Tue. He is in a class with 4 other 2-year-old kiddo’s with special needs.  His PT and Infant Toddler Teacher are the ones hosting the class….they are so amazing with him!!!!  On top of that his … Continue reading

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Good Eats

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For the kids Brayden & Logan Making some Healthy Choices  

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Merry Christmas!!!

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Wishing everyone a very Merry Christmas!!! We have been hit with many new obstacles this year and are tackling them one by one with the love and support from all who are around us. Brayden has such a loving spirit it rubs … Continue reading

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More Equipment Arrived!!!

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We finally got to bring home Brayden’s stroller/wheelchair. I cannot belive it took five months but yes it is finally here and we are so happy to have it. This is an EasyS stroller with all the fixings. It came with a … Continue reading

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Brayden at aqua therapy

click the link…. http://www.youtube.com/watch?v=QGOCYDMV-Zk

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Brayden has pneumonia

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This is Brayden’s first time with pneumonia. He has been on anti-biotics for five days now. He is still raspy, but feeling ok. We continue with his nebulizer treatments, CPT & cough assist. We are all praying for him to … Continue reading

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Brayden’s AFO’s

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Brayden finally got his AFO’s (Ankle Foot Orthotics). They help support his ankles while standing and positioning. He wares them about 8 hours a day and can also ware them at night.

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Brayden’s Stander

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So this is Brayden in his stander. It is recommended that he stand about 2 hours a day. Standing is very important to improve bone density, and help resist bone fractures. It does have a tray that attaches so he can play with things while … Continue reading

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Pulmonology Appointment

Friday Sep. 2 Brayden had his first appointment with Dr. Schuen. We went prepared knowing what to ask for….I didn’t think that the office would act so quickly though. That day they ordered a Sleep Study, Echo, Swallow Study, Chest … Continue reading

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“Welcome to Holland” By Emily Perl Kingsley

“I am often asked to describe the experience of raising a child with a disability—to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this: When you’re … Continue reading

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