Blog Archives

You Caring

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https://www.youcaring.com/brayden-janetzke-449521 This link will take you to our fundraising page. We have received a generous grant from a local organization called Lori’s Voice to help with the cost of Brayden’s Van! Here is another way you can help by donating … Continue reading

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Bowl with Brayden

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  We have fantastic news coming up we have our Annual Bowling Event this Friday! April 29th from 6 to 9 pm at Northway Lanes in Muskegon, Mi We will have a huge Silent Auction table this year and New … Continue reading

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Bowl with Brayden

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We cannot thank you enough for your support! We have to thank our sponsors too! Thrivent, Woman’s Life Chapter 894, Macleod Insurance Agency, and Northway Lanes! We had so many donations for our Silent Auction that ended up being a wonderful turnout! With your help we … Continue reading

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Brayden Started Riding the Bus to School!

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I am very happy for Brayden. He has wanted to ride the bus to and from school ever sense Logan has. Now he can and his brother is riding with him! He absolutely lives it! Both the boys’ teachers let me know how they got to school with big smiling grins on there faces. That to me, as a mom, is priceless! It wasn’t easy, we had to make sure everything was in place before he was able to do this. Knowing that he is safe, has an aide, and a neck brace while he rides on the bus, made it a lot easier. I am just so happy for him and Logan. Proud Momma! Continue reading

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Biomarker Study

Today Brayden was able to participate in a biomarker study for SMA. We went to Kalamazoo (2 hour drive) to be able to help with the study. Each and every step gets us closer to finding a cure! We had to make … Continue reading

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August – SMA Awareness Month

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✦Spinal Muscular Atrophy is a motor neuron disease which affects the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing ✦Spinal Muscular Atrophy is the #1 genetic killer of children under the … Continue reading

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Saturday May 4, 2013 Join us at the Annual Families of SMA run/walk/roll

2013 Michigan Chapter 5K Run, Walk-n-Roll & Family Fun Day Sat 05/04/2013 8:30 AM – 12:00 PM Hawk Island Park 1601 East Cavanaugh Lansing, MI 48910 If you wish to register or donate please click the link below, make sure … Continue reading

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